It's been a tough week and I couldn't find the heart or the time to post anything. Finally, this afternoon we had some good news about our girl. Although she had been improving and was full of beans, the twice daily injections of anti clotting drug into the cannula in her leg were causing her a lot of pain to the point where she could barely lie still for me to safely administer it (and both parents were in tears). On Wednesday, we had a day at hospital for a CT scan which involved going via the Emergency Dept to have an IV cannula in her hand for the contrast to be given (Pretty traumatic, needless to say). The CT scan was to check on the progress of the blood clot. To top it all off, she became sick the day before the proposed scan with tonsilitis and had to start on penicillin mixture which was making her gag. Today, after hearing that the clot had improved but was still there, we had to go back to hospital to change the cannula in her leg (the existing one was bruised and bleeding) in order to continue with the anti clotting drug. We had the numbing cream on ready to insert the needle part when the neuro registrar came in and examined our girl to check how she was going. He went off to talk to the haematology team and then returned and said we could stop the injections. I was ecstatic! Joyfully, we jumped in the car and came home. The girls stayed up late to celebrate no "medicine in the leg" at bedtime, Scott and I had Thai takeaway and all was right with our little world. We go back to the hospital on Monday afternoon for a proper "review" with the head neurologist. The other drugs are continuing for the present and there may be another scan in a few weeks but we'll cross that bridge when we come to it. No more waking up and feeling sick at the thought of facing another painful injection for a brave little girl. Yippee!!!
Thanks again to everyone for their support and love. We feel very lucky to be surrounded by such caring friends and family (and bloggy mates!). A special thank you to Melissa for all her tips on minimising the physical and psychological trauma for little people and being a strong advocate for my little girl. You really helped me get through the last few days.